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8/26/2017
MH Memorial Ride and After Party 2017

9/23/2017 » 9/24/2017
Scientific Conference 2017

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MHAUS Group Tempate
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MHAUS Groups

MHAUS Groups are an important way to nurture interest in our local communities about Malignant Hyperthermia and why local families and healthcare professional should know about MH. Use these guidelines as a template to help with the MH effort in your community to keep people safe from Malignant Hyperthermia emergencies.

 

A) MH GROUP GUIDELINES TEMPLATE:

  1. MH Group members are suggested to be paid members of MHAUS in good standing.
    Service area: define the geographical footprint the group will serve: such as, your village, city, town, county, or state, etc.
  2. Technology: someone in the group able to communicate by email, manage group's page on the MHAUS.org, and participate on Social Media.
  3. Registration: MH Groups work with the Patient Liaison Committee.
  4. Governance: growing groups might consider Roberts Rules of Order.
  5. Duration: MH Groups renew annually with the Patient Liaison Committee.
  6. Legality: all MH Groups operate under the aegis of Malignant Hyperthermia Association of the United States, a nonprofit 501(c)(3) organization until advised otherwise.
  7. Operating funds: group monies come from group fundraising activities. Monies raised by MH Groups are shared with MHAUS. 

B) INVENTORY YOUR FOOTPRINT:

  1. Ambulance services
  2. Ambulatory surgical centers
    Hospitals
  3. Medical schools and universities
  4. Office based surgical facilities; plastic surgeons, etc.
  5. Political and civic leaders 

C) FORM RELATIONSHIPS WITH PEOPLE IN YOUR FOOTPRINT:

  1. Anesthesiologists
  2. Facility educators
  3. Families
  4. Hospital pharmacists
  5. Medical facility risk managers
  6. Medical school faculty and researchers 
  7. Nurse anesthetists
  8. Operating room management staff
  9. Political and civic leaders
  10. Residents
  11. Surgical facility planners 

D) EVENTS:

Events goal:

Suggest selecting one point from each of the four areas of engagement below each quarter of the year; Networking, Mass Gatherings, Resource Development, and Image Enhancement.

Networking:

  1. Meet, greet, and learn about members and their families.
  2. Work with nurse educators at local hospitals to host an MH info table for patients during the day and for the local chamber of commerce or similar community service group in the evening.
  3. Regular meetings talking about MH 
  4. Talk about genetic disorders in terms of the Family Health History Toolkit

Mass Gathering:

  1. Attend a performance as a group
  2. Host a MH "Let’s Save a Life” one-day conference
  3. Picnic 
  4. Social gatherings
  5. Sporting events

Resource Development:

  1. Recruit members (MH susceptible people, family, friends, medical professionals and others)
  2. Help others to understand why supporting the MH effort is important to you.
  3. Host a fundraiser to raise monies for: MH Hotline, people that cannot afford membership or testing, for established funds. Some suggestions: house parties, dinners, local sport competition events such as a bike-a-thon, run-walks, or swim.

Image Enhancement:

  1. Community service
  2. Adopt a highway and pick up trash
  3. Legislative and MH surgical facility advocacy
  4. Write letters to facilities in your footprint.
  5. Public relations
  6. Work with hospitals to create an information tent event in their parking lot to talk about MH and other disorders and diseases. 

Event considerations:

  1. Purpose: Have a clear theme or purpose for the gathering.
  2. Timeline: decide when the event is and work backwards.
  3. Host: Recruit a dynamic host.
  4. Audience: Invite a good group to get things started.
  5. Promotion: Invite people in; use your networks.
  6. Management: Party down; make sure conversation keeps going with fresh material and people.
  7. Moderation: Expect party crashers; keep the peace.
  8. Staffing: Make sure you have adequate assistance to keep it going.

To add your ideas the areas of for engagement above please email tina@mhaus.org 

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