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Item:  Booklet, 24 pages

Item code: MHGUIDE

Last revised: 2016

Printed:  Black and red on white

Size:  in: 8.5 x 5.5

Language:  English

Description:  Patient source book that talks about: what is malignant hyperthermia, questions before anesthesia, testing, frequently asked questions, ID Tags, sample letters to family, medical facilities, and insurance companies.

Table of Contents:

What is Malignant Hyperthermia? 2

• Who is Susceptible?
• Safe Anesthetics & Triggers
• Incidence of MH
• Causes of an MH Episode
• MH Treatment
• Identifying MH Patients
• Surgery and MH Patients
• MH Outside Operating Room
• Other Things that Trigger MH (non-anesthesia)
• Links Between MH and Other Disorders

Questions to Ask Before Anesthesia 6

Gold Standard MH Test 9

• What is The "Gold Standard” Test for MH?
• Why have the Muscle Biopsy Test?
• Who Should be Tested?
• Factors to be Considered When Having the Muscle Biopsy
• Accuracy & Results from the MH Test
• MH Testing Sites

Molecular Genetic Testing for MH 11

• What is Molecular Genetic Testing?
• Why Consider Molecular Genetic Testing?
• How does Molecular Genetic Testing Apply to MH?
• What is the Alternative to Genetic Testing?
• Who can Benefit?
• Who Orders the Genetic Testing?

Frequently Asked Questions 14

Medical ID Program 18

Sample Letter to Family 18

Sample Letter to Hospital 20

Sample Letter to Insurance Company 21