Tyler’s Story --

My son, Tyler, is 13 years old. He is MH susceptible. Tyler’s father and every single male on the paternal side, have MH. They have lost two members of the family due to this genetic disorder. Tyler’s dad went on to have two sons with another wife and those boys are also MH susceptible; confirmed with the muscle biopsy. As Tyler’s mother, I opted out of having him go through the painful procedure as Tyler has always been considered MH positive.

Tyler has always shown signs of having this disorder. His body temperature spikes to 102° F during the summer and his muscles will cramp, so I have to monitor his activity carefully. When he is scheduled for surgery, he is always the first patient so the anesthesia machine is clean and prepared for Tyler. The surgical center ensures to have all the necessary medicine and equipment on hand for him. Furthermore, whenever he checks into the hospital here in North Carolina, an alert flashes to make the staff aware of his MH susceptibility.

I had never heard of Malignant Hyperthermia until Tyler was born. Now I read a lot about it and stay informed. Tyler is an active athlete in his middle school and is truly wonderful. He suffers a bit more muscle pains than the average person but that doesn’t slow him down.

As told by Tyler’s mother, Carrie.

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